Abstract
This study examines the limitations and ableist assumptions embedded in quantitative survey instruments used to gather data on postsecondary students with disabilities. Specifically, three National Center for Educational Statistics postsecondary surveys were examined as data sources. Employing a critical disability studies lens and discourse analysis, the paper identifies how these surveys perpetuate dominant ideologies through reliance on the medical model of disability, binary response options, and restrictive language that limits respondent self-representation. The findings highlight significant barriers in the framing of disability-related questions, which compromise the validity and inclusivity of data collection.
Similar content being viewed by others
Explore related subjects
Discover the latest articles and news from researchers in related subjects, suggested using machine learning.References
Annamma, S. A., Connor, D., & Ferri, B. (2013). Dis/ability critical race studies (DisCrit): Theorizing at the intersections of race and dis/ability. Race Ethnicity and Education, 16(1), 1–31.
Annamma, S. A., Ferri, B. A., & Connor, D. J. (2018). Disability critical race theory: Exploring the intersectional lineage, emergence, and potential futures of DisCrit in education. Review of Research in Education, 42(1), 46–71.
Areheart, B. A. (2008). When disability isn’t just right: The entrenchment of the medical model of disability and the goldilocks dilemma. Ind. LJ, 83, 181.
Arneil, B. (2024). The Intersection of Ableism, Domestic Colonialism and Statistics in Britainfrom Bentham to Galton. Modern Intellectual History. 1–16.
Arstein-Kerslake, A., Maker, Y., Flynn, E., Ward, O., Bell, R., & Degener, T. (2020). Introducing a human rights-based disability research methodology. Human Rights Law Review, 20(3), 412–432.
Avellone, L., & Scott, S. (2017). National databases with information on college students withdisabilities.
Baglieri, S., Valle, J. W., Connor, D. J., & Gallagher, D. J. (2011). Disability studies in education: The need for a plurality of perspectives on disability. Remedial and Special Education, 32(4), 267–278.
Barazandeh, G. (2005). Attitudes toward disabilities and reasonable accommodations at the university. The UCI Undergraduate Research Journal, 8(1), 1–11.
Blaser, B., & Ladner, R. E. (2020, March). Why is data on disability so hard to collect and understand?. In 2020 Research on Equity and Sustained Participation in Engineering, Computing, and Technology (RESPECT) (Vol. 1, pp. 1–8). IEEE.
Breckenridge, C. A., & Vogler, C. A. (2001). The critical limits of embodiment: Disability’s criticism. Public Culture, 13(3), 349–357.
Brzuzy, S. (1997). Deconstructing disability: The impact of definition. Journal of Poverty, 1(1), 81–91.
Burchardt, T. (2000). The dynamics of being disabled. Journal of Social Policy, 29(4), 645–668.
Carter, D. F., & Hurtado, S. (2007). Bridging key research dilemmas: Quantitative research using a critical eye. New Directions for Institutional Research
Cowan, R. S. (1972). Francis Galton’s statistical ideas: The influence of eugenics. Isis, 63(4), Article 509528.
Critical Disability Studies Collective. (n.d.). Terminology. Terminology | University ofMinnesota. Retrieved from https://cdsc.umn.edu/cds/terms13 December 2022.
Davis, L. (1997). The bell curve, the novel, and the invention of the disabled body in the nineteenth century. The Disability Studies Reader, 9–28.
Delfs, C. H., & Campbell, J. M. (2010). A quantitative synthesis of developmental disability research: The impact of functional assessment methodology on treatment effectiveness. The Behavior Analyst Today, 11(1), 4.
Dolmage, J. T. (2018). Disabled upon arrival: Eugenics, immigration, and the construction of race and disability. The Ohio State University Press.
Ercikan, K., & Roth, W. M. (2011). Constructing data. The SAGE Handbook for Research in Education: Pursuing Ideas as the Keystone of Exemplary Inquiry. 219–245.
Faggella-Luby, M., Lombardi, A., Lalor, A. R., & Dukes, L., III. (2014). Methodological trends in disability and higher education research: Historical analysis of the Journal of Postsecondary Education and Disability. Journal of Postsecondary Education and Disability, 27(4), 357–368.
Fairclough, N. (2001). Critical discourse analysis as a method in social scientific research. Methods of critical discourse analysis, 5(11), 121–138.
Felix, E. R., Gándara, D., & Jones, S. (2024). “All Students Matter”: The place of race indiscourse on student debt in a federal higher education policymaking process. Teachers College Record, 126(2), 147–182.
Fichten, C. S., & Amsel, R. (1986). Trait attributions about college students with a physical disability: Circumplex analyses and methodological issues 1. Journal of Applied Social Psychology, 16(5), 410–427.
Friedman, C., & Owen, A. L. (2017). Defining disability: Understandings of and attitudes towards ableism and disability. Disability Studies Quarterly. https://doi.org/10.18061/dsq.v37i1.5061
Gee, J. P. (2014). An introduction to discourse analysis: Theory and method. Routledge.
Gillborn, D. (2012). Intersectionality and the primacy of racism: Race, class, gender and disability in education. Keynote address presented at the 6th Annual Conference of theCritical Race Studies in Education Association, May 31–June 2, Teachers College, Columbia University, New York City.
Gillborn, D., Warmington, P., & Demack, S. (2018). QuantCrit: Education, policy, ‘Big Data’and principles for a critical race theory of statistics. Race Ethnicity and Education, 21(2), 158–179.
Goldstein, S. B., & Johnson, V. A. (1997). Stigma by association: Perceptions of the dating partners of college students with physical disabilities. Basic and Applied SocialPsychology, 19(4), 495–504.
Gough, H. G. (1960). The adjective check list as a personality assessment research technique. Psychological Reports, 6(1), 107–122.
Grills, N., Singh, L., Pant, H., Varghese, J., Murthy, G. V. S., Hoq, M., & Marella, M. (2017). Access to services and barriers faced by people with disabilities: a quantitative survey. Disability, CBR & Inclusive Development, 28(2), 23–23.
Grönvik, L. (2009). Defining disability: effects of disability concepts on research outcomes. International Journal of Social Research Methodology, 12(1), 1–18.
Hahn, H., & Pool Hegamin, A. (2001). Assessing scientific measures of disability. Journal of Disability Policy Studies, 12(2), 114–121.
Heimlich, K. (2001). Animal-assisted therapy and the severely disabled child: A quantitative study. Journal of Rehabilitation, 67(4).
Iacono, T., & Carling-Jenkins, R. (2012). The human rights context for ethical requirements for involving people with intellectual disability in medical research. Journal of Intellectual Disability Research, 56(11), 1122–1132.
Jackson, D. L., & Jones, S. J. (2014). A virtual commitment: Disability services information on public community college websites. Journal of Postsecondary Education and Disability, 27(2), 129–138.
Kafer, A. (2013). Feminist, queer, crip. Indiana University Press.
Katz, S. (1983). Assessing self-maintenance: activities of daily living, mobility, and instrumental activities of daily living. Journal of the American Geriatrics Society, 31(12), 721–727.
Kitchin, R. (2000). The researched opinions on research: Disabled people and disability research. Disability & Society, 15(1), 25–47.
Konur, O. (2006). Teaching disabled students in higher education. Teaching in Higher Education, 11(3), 351–363.
Kroll, T., Neri, M. T., & Miller, K. (2005). Using mixed methods in disability and rehabilitation research. Rehabilitation Nursing Journal, 30(3), 106–113.
Lanahan, L., Scotchmer, M., & McLaughlin, M. (2004). Methodological critique of current NCES survey measures of instructional processes.
Lauer, E. A., Henly, M., & Coleman, R. (2019). Comparing estimates of disability prevalence using federal and international disability measures in national surveillance. Disability and Health Journal, 12(2), 195–202.
Law, M., & Letts, L. (1989). A critical review of scales of activities of daily living. The American journal of occupational therapy, 43(8), 522–528.
Linton, S. (1998). Disability studies/not disability studies. Disability & Society, 13(4), 525–539.
Lovett, B. J., & Sparks, R. L. (2013). The identification and performance of gifted students with learning disability diagnoses: A quantitative synthesis. Journal of Learning Disabilities, 46(4), 304–316.
Madans, J. H., & Loeb, M. (2013). Methods to improve international comparability of census and survey measures of disability. Disability and rehabilitation, 35(13), 1070–1073.
Maggin, D. M., O’Keeffe, B. V., & Johnson, A. H. (2011). A quantitative synthesis of methodology in the meta-analysis of single-subject research for students with disabilities:1985–2009. Exceptionality, 19(2), 109–135.
Mamiseishvili, K., & Koch, L. C. (2011). First-to-second-year persistence of students with disabilities in postsecondary institutions in the United States. Rehabilitation Counseling Bulletin, 54(2), 93–105.
Mannor, K. M., & Needham, B. L. (2024). The study of ableism in population health: A critical review. Frontiers in Public Health, 12, 1383150.
McDonald, K. E., & Kidney, C. A. (2012). What is right? Ethics in intellectual disabilities research. Journal of Policy and Practice in Intellectual Disabilities, 9(1), 27–39.
McGrew, K. S., Thurlow, M. L., & Spiegel, A. N. (1993). An investigation of the exclusion of students with disabilities in national data collection programs. Educational Evaluation and Policy Analysis, 15(3), 339–352.
McGrew, K. S., Algozzine, B., Ysseldyke, J. E., Thurlow, M. L., & Spiegel, A. N. (1995). The identification of individuals with disabilities in national databases: Creating a failure to communicate. The Journal of Special Education, 28(4), 472–487.
Mitra, S. (2017). Disability, health and human development. Springer Nature.
Murugami, M. W. (2009). Disability and identity. Disability Studies Quarterly. https://doi.org/10.18061/dsq.v29i4.979
National Center for Education Statistics (NCES). (2006). The Condition of Education 2006. NCES 2006–071. Washington, DC: U.S. Department of Education.
NCES Data Officer (2022a, April 15). Missing BPS Data from 2017?
NCES Data Officer (2022b, April 18). Missing BPS Data from 2017?
Nelson, T. E., Oxley, Z. M., & Clawson, R. A. (1997). Toward a psychology of framing effects. Political Behavior, 19, 221–246.
O’Day, B., & Killeen, M. (2002). Research on the lives of persons with disabilities: The emerging importance of qualitative research methodologies. Journal of Disability PolicyStudies, 13(1), 9–15.
Palmer, M., & Harley, D. (2012). Models and measurement in disability: An international review. Health Policy and Planning, 27(5), 357–364.
Pate, J. R., Ruihley, B. J., & Mirabito, T. (2014). Displaying disability: A content analysis of person-first language on NCAA Bowl Championship Series college athletic department websites. Journal of Applied Sport Management, 6(1), 5.
Pfeiffer, D. (1994). Eugenics and disability discrimination. Disability & Society, 9(4), 481–499.
Piedmont, R. L., McCrae, R. R., & Costa, P. T. (1991). Adjective check list scales and the five factor model. Journal of Personality and Social Psychology, 60(4), 630.
Piepzna-Samarasinha, L. L. (2018). Care work: Dreaming disability justice. Arsenal Pulp Press.
Price, M., & Kerschbaum, S. L. (2016). Stories of methodology: Interviewing sideways, crooke and crip. Canadian Journal of Disability Studies, 5(3), 18. https://doi.org/10.15353/cjds.v5i3.295
Rammstedt, B., Beierlein, C., Brähler, E., Eid, M., Hartig, J., Kersting, M., & Weichselgartner, E. (2015). Quality standards for the development, application, and evaluation of measurement instruments in social science survey research. RatSWD Working Paper Series, 245.
Rembis, M. (2018). Disability and the history of eugenics. Ders/Catherine Kudlick/Kim E. Nielsen (Hg): The Oxford Handbook of Disability History. Oxford, 85–103.
Renwick, C. (2016). Eugenics, population research, and social mobility studies in early and midtwentieth-century Britain. The Historical Journal, 59(3), 845–867.
Rogers, R. (2004). An introduction to critical discourse analysis in education. In An introduction to critical discourse analysis in education (pp. 31–48). Routledge
Safer, A., Farmer, L., & Song, B. (2020). Quantifying difficulties of university students with disabilities. Journal of Postsecondary Education and Disability, 33(1), 5–21.
Samuels, E. (2017). Six ways of looking at crip time. Disability studies quarterly. https://doi.org/10.18061/dsq.v37i3.5824
Simeonsson, R. J., Leonardi, M., Lollar, D., Bjorck-Akesson, E., Hollenweger, J., & Martinuzzi, A. (2003). Applying the International Classification of Functioning, Disability and Health (ICF) to measure childhood disability. Disability and rehabilitation, 25(11–12), 602–610.
Stephens, E., & Cryle, P. (2017). Eugenics and the normal body: The role of visual images and intelligence testing in framing the treatment of people with disabilities in the earlytwentieth century. Continuum, 31(3), 365–376.
Strauss, D., de la Salle, S., Sloshower, J., & Williams, M. T. (2022). Research abuses against people of colour and other vulnerable groups in early psychedelic research. Journal of Medical Ethics, 48(10), 728–737.
Suzuki, S., Morris, S. L., & Johnson, S. K. (2021). Using QuantCrit to advance an anti-racist developmental science: Applications to mixture modeling. Journal of Adolescent Research, 36(5), 535–560.
Titchkosky, T. (2001). Disability: A rose by any other name? Canadian Review of Sociology and Anthropology, 38, 125–140.
Vaccaro, A., Kimball, E. W., Wells, R. S., & Ostiguy, B. J. (2015). Researching students with disabilities: The importance of critical perspectives. New Directions for Institutional Research, 2014(163), 25–41. https://doi.org/10.1002/ir.20084
Valeras, A. (2010). “We don’t have a box”: understanding hidden disability identity utilizing narrative research methodology. Disability Studies Quarterly, 30(3/4).
Van Dijk, T. A. (1993). Principles of critical discourse analysis. Discourse & Society, 4(2), Article 249283.
Vaughan, K. T. L., & Warlick, S. E. (2020). Accessibility and disability services in Virginia’s four-year academic libraries: A content analysis of library webpages. Virginia Libraries, 64(1), 2.
Wessel, R. D., Jones, J. A., Markle, L., & Westfall, C. (2009). Retention and graduation of students with disabilities: Facilitating student success. Journal of PostsecondaryEducation and Disability, 21(3), 116–125.
Author information
Authors and Affiliations
Corresponding author
Ethics declarations
Conflict of interest
I am the sole and corresponding author for this manuscript and do not have any conflicts of interest to disclose. I understand that, if accepted for publication, a certification of authorship form will be required.
Additional information
Publisher's Note
Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.
Rights and permissions
Springer Nature or its licensor (e.g. a society or other partner) holds exclusive rights to this article under a publishing agreement with the author(s) or other rightsholder(s); author self-archiving of the accepted manuscript version of this article is solely governed by the terms of such publishing agreement and applicable law.
About this article
Cite this article
Susi-Dittmore, D. Toward More Accurate and Inclusive Surveying: A Discourse Analysis of NCES Postsecondary Survey Instruments Using a Critical Disability Studies Framework. Res High Educ 66, 27 (2025). https://doi.org/10.1007/s11162-025-09845-7
Received:
Accepted:
Published:
DOI: https://doi.org/10.1007/s11162-025-09845-7